LATEST NEWS FROM ROUND THE GLOBE
IFKF Global Headquarters
PO Box 2020, 1400 DA, Bussum Netherlands
Ph 31 35 697 8010 Fax 31 35 697 8080
Email latest news to: Jan Lantink - IFKF Project Officer
Note IFKF News Archive page for old articles.
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Our President's Newsletters - Timur Erk
12th issue - October 2011
11th issue - July/August 2011
10th issue - June 2011
Our President's Newsletters - Dr Miguel Riella
9th issue - February 2011
8th issue - December 2010
7th issue - September 2010
6th issue - June 2010
5th issue - April 2010
4th issue - January 2010
3rd issue - December 2009
2nd issue - September 2009
1st issue - July 2009
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Posted 10 January 2012
The Deutsche Nierenstiftung has produced an eye catching video for use during WKD related activities, with the WKD Silhouettes as cast. If you are interested to use the video with a voice over in your own language, please contact Els de Weerd elsdeweerd@ifkfms.com.
We are discussing with DNS to make other very creative initiatives in Germany available for our member foundations.
Posted 25 October 2011
On 18 September 2011 it was confirmed that the final, approved “Political declaration of the High-level Meeting of the General Assembly on the Prevention and Control of Non-communicable Diseases” – did indeed, include references to renal disease wherein it states, “We, Heads of State and Government and representatives of States and Governments, assembled at the United Nations from 19 to 20 September 2011, to address the prevention and control of non-communicable diseases worldwide, with a particular focus on developmental and other challenges and social and economic impacts, particularly for developing countries – [paragraph 19]
“Recognize that renal, oral and eye diseases pose a major health burden for many countries and that these diseases share common risk factors and can benefit from common responses to non-communicable diseases”
Dan Larson has been instrumental in coordinating many activities, leading to this success.
Dan was able to ‘mobilise’ a network of ISN members and other colleagues in the renal
community, including those activated through IFKF. Many were able to make contact with their own health ministers, and in turn a number of those health ministers wrote directly to WHO advocating for the inclusion of kidney disease in the final statement. These included health ministers from Mexico, Ethiopia, China, India, Japan, the United States – and several others.
Download: Dan Larson summary to IFKF regarding ISNs seat at the table for CKD initiative
Guillermo Garcia Garcia has provided us with two important documents. The first one is a PAHO publication on Cardiovascular Health in the Americas, where at last CKD screening in high risk populations is included as an important strategy for the prevention an control of CKD and CVD (Item 56). Another one is the inclusion of renal disease (item 19) in the UN Declaration on the Prevention and Control of NCDs. Both are the result of the efforts of ISN, IFKF and SLANH, among others, lobbying national governments to include CKD as a major CVD risk.
Download: Priorities for CV Health in the Americas
Download: UN HLM final
Bill Couser et all have published ‘The contribution of chronic kidney disease to the
global burden of major non communicable diseases’ (2011).
Download: KI Couser et al CKD Oct 2011
Posted 12 October 2011
Fernanda Arce Amaré from the Asociación Mexicana para el Estudio de la Acidosis Tubular Renal ATR is very active in publishing her ATR newsletter. She has now sent her the latest ATR newsletter in English. You can download the newsletter here
Posted 30 August 2011
First Conference on Nephrology in Patagonia
On behalf of Nelson Junqueras and his team (Fundacion Patagonica para la Salud) we would like to ask your attention to the first conference on nephrology in Bariloche, in southern Argentina. FPS is a new IFKF member.
Downloads: Program, Afiche
Posted 23 August 2011
Asociacion Acidosis Tubular Renal Mexcio changed their name into
Asociación Mexicana para el Estudio de la Acidosis Tubular renal, AC.
For more information about this organisation please contact acidosistubular@gmail.com or visit the website www.acidosistubular.com
President Maria Fernanda Arce Amare
Here there latest newsletter (just for our Spanish speaking members).
Previous newsletters can be asked for by email: acidosistubular@gmail.com
Posted 23 August 2011
We are delighted to welcome our new member in Argentina, Patagonia.
FUNDACION PATAGONICA para LA SALUD
Capinteros 5317
8400 ARGENTINA
President – Nelson Mario Junqueras enefe@bariloche.com.ar
Ph 054 02944 442012
Posted 4 August 2011
TANKER Foundation (TAMILNAD KIDNEY RESEARCH FOUNDATION) of Chennai, India announces Awards for the most outstanding Medical Doctor and the most outstanding young researcher. TANKER and IFKF will keep you informed.
Posted 2 May 2011
Poster Awards Vancouver 2011 download here
‘Jan Lantink is studying the posters’
Posted 19 Februay 2011 (Update Program 12th IFKF International Meeting 2011 Vancouver)
Download here the Program 12th IFKF International Meeting 2011 Vancouver: Program IFKF 2011 Vancouver
Posted 31 December 2010
Additional information 12th IFKF International Meeting 2011 ,
4 to 7 April 2011 - Vancouver, Canada -
- Letter of Invitation
- Poster Abstract Submission Form
- Please complete this form if you require a VISA or Official Letter of Invitation to Enter Canada
Travel Grants for Annual Meeting Vancouver 2011.
If you wish to apply for a travel grant. Please fill out the application form and email the form to elsdeweerd@ifkfms.com
Because available grants are limited, it is the Board policy to give precedence to those members who have not applied in the past years.
Download IFKF Travel Subsidy: Travel Subsidy Policy
Posted 15 November 2010
IFKF is a member of the European Kidney Health Alliance EKHA. The membership has been sponsored by the Dutch Kidney Foundation. CEAPIR, representing European patient organisations is also a member, and is represented by Mark Murphy, CEO of our Irish member. EKHA organizes every year the World Kidney Day event in the European Parliament, together with the WKD team.
Recently we have received the following message, which may be also of interest for you, being an example of a coordinated approach to fight chronic (kidney) diseases. The document scan be downloaded.
Read the document: Final Press release EP meeting on chronic diseases 5 October 2010
The Members of Parliament (MEP) Group for Kidney Health met with the MEP Heart Group, MEPs against Cancer and the EU Diabetes Working Group for an unprecedented meeting on chronic diseases in Europe.
Read the document: Joint Statement 5 October 2010
Experts from the Chronic Disease Alliance presented policy recommendations from the paper ‘A United Prevention Approach’ and the chairs of the four MEP Groups issued a joint statement calling for action on improved policies on the four main risk factors for chronic diseases: tobacco, poor diet, alcohol and lack of physical activity.
See http://gallery.me.com/gleamlight/100181 for photos of the meeting.
Posted 9 September 2010
WKD 2011 - Start Planning Now!
Read the document: WKD 2011. Start Planning Now!
Posted 12 August 2010
Prevention of cardiovascular diseases
Dr Maria Bianchi from Argentina has provided us with an excellent document on the prevention of cardiovascular diseases, with references to the detection and prevention of CKD. The document is written in Spanish and English. It is a Regional Plan for Action’ for the period 2011 – 2016. The plan is the result of the work of a panel of specialists during a meeting in Chaco, organized by the Argentine Northeastern Kidney Foundation, with the participation of Dr. Miguel Riella, President of IFKF. The document has been edited by the Organizacion Panamericana de la Salud (PAHO). This document is also very relevant for other regions in the world.
Read the document: Cardiovascular Diseases Prevention & Control 2011-2016
Posted 1 July 2010
Promoting 17th Budapest Nephrology School
(Nephrology, Hypertension, Dialysis and Transplantation)
Dates: 26–31 August 2010
Venue: Mercure Budapest Korona
Professor Lazlo Rosivall - Hungarian Kidney Foundation
Tel/Fax: 36 1 2100 100 - mobile: 36 20 825 9756
E-mail: rosivall@net.sote.hu
Program www.bns-hungary.hu
Under the auspices of ISN, ERA-EDTA and ISP - Semmelweis University - International Nephrology Research & Training Center - Worldwide Hungarian Medical Academy - Vanderbilt University Medical Center - University of Toronto, Avicenna College
In conjunction with 8th International Symposium on Wine and Health and 5th World Kidney Day
Participation fee (700 Euro - early bird price): Fee includes attendance at nephrology refresher CME course; certificate of attendance; coffee breaks and lunches; attendance at the 8th International Wine and Health Symposium; Organ concert at St. Stephen's Basilica; Sightseeing tour with Parliament visit; attendance at the evening Danube Cruise; Farewell Reception and support for buying the book of Nephrology, Hypertension, Dialysis, Transplantation (Eds: Thomas E Andreoli, Eberhard Ritz, László Rosivall).
Social program highlight: The 8th International Symposium on Wine and Health is an important event where you will taste quality Hungarian wines. Wine is not only important to Hungarians but it has a several thousand-year history in mankind’s life. Although, there are 22 historical vineyards in our country, among them such famous places as Tokaj, Villány, Badacsony, and the long culture and tradition of wine consumption, there is a high incidence of cardiovascular disease with the resultant serious decrease in life expectancy in this region.
Registration fee subsidy: Participants who can not get any support from companies, ERA-EDTA etc. may apply for Hungarian Kidney Foundation support.
The course is designed to meet the requirements of 30 European/US CME credit points. For Hungarian participants the course is accredited by OFTEX for 50 credits. The Course included 43 hours of scientific lectures and a final examination which can be locally evaluated according to national standards.
Posted 1 July 2010
IFKF Member - Tamilnad Kidney Research Foundation, Chennai, India
Also known as theTanker Foundation www.smfhospital.org
Congratulations to The Tanker Foundation who celebrate 17 years of service - to 30 June 2010
Achievements include:
- 609 patients 70,460 dialysis sessions have been given at subsidized rates
- Rs. 58.65 Lakhs disbursed to 988 patients as one-time contributions ranging from Rs. 5,000/- to Rs. 50,000/- for dialysis, transplantation and medication costs
- conducted over 152 Awareness Programs about kidney disease in school, colleges & public forums.
Future plans
- From July 1 2010, they reduce cost of a dialysis at our subsidised dialysis units at Kilpauk, Ambattur and Madurai. Patients will now be charged Rs 375 per session.
- Donors can sponsor a dialysis at Rs 800 as this is the cost to the foundation.
- Our website (wwww.tankerfoundation.org) will be revamped later in the month.
- Set up a dialysis unit in Coimbatore in a space donated by Mr Krishna Kumar of Arya Vaidhya Pharmacy
1 April 2010
Chaco, Argentina - 1st Conference on Kidney Disease in Disadvantaged Populations in the Southern Cone - 8 to 10 April 2010
To view Conference program go to www.conferenciacomgan.com.ar (English/Portugese)
For more info contact: María Eugenia Victoria Bianchi - mebianchi@gigared.com
IFKF Council Member - Fundación Renal del Nordeste
Posted 2 March 2010
The IFKF 'Sister' Program
A refreshingly innovative program for our IFKF Council Members to consider, aimed at enhancing cooperation among Kidney Foundations worldwide. Its mission is to facilitate the cooperation between developing Foundations and centers of excellence and the encouragement of exchange of personnel, resources and strategies.
Format - The essence of the Sister Program is to promote the development of a young and/or smaller Foundation (EF = Emerging Foundation) through the goodwill and resources of the Supporting Foundation (SF).
Benefits - The SF will have the advantage of recognition in IFKF media (IFKF news, e-update and website) and can also capitalize on the strengths of the EF based on local experience and locally prevailing clinical and environmental conditions. A EF will have preference for travel grants to our Annual Meeting and to register at a discount rate.
First time application - Any Kidney Foundation can form an IFKF Sister Center pairing, provided that:
* at least one unit is in the developing world and is considered the Emerging Foundation
* both units are IFKF Council Members
A certificate will be given by the IFKF at our Annual Meeting to both organizations to knowledge the partnership.
The application system is an online form that allows the main contact person at both centers to access and fill-out the application information. You are required to provide the two valid email addresses of the contacts at each center.
Contact Miss Ayse Onat at ayse.onat@tbv.com.tr to receive information on how to proceed. Refer to our IFKF Membership Register to allow first contact.To apply, download and complete IFKF Sister Program Application Form.
Posted 2 February 2010
The Joel D Kopple Award
This newly created award recognises IFKF Council Member organisations, individual Members, or Associate Members, for outstanding performance in the area of kidney disease – detection, prevention, treatment, care. This Award will be presented annually during future IFKF Annual Meetings.
See Procedure outline ** and Award Guidelines ** click links
The Jury will be formed by a panel of the individuals appointed by the Board and will consider the following criteria:
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Outstanding performance refers to any initiative or action resulting in a considerable and visible short term or long term internal or external impact.
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Internal impact can be growth in finances, membership or other organizational attributes, improved management, professionalizing etc of the organisation.
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External impact can be any initiative or action resulting in the improvement of detection and prevention of chronic kidney disease, treatment of kidney disease or care of the kidney patient.
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Measurement of outstanding performance will be considered in the context of the local environment and resources (income, financial resources, manpower, skill sets) available to the nominated organisation or individual at the time of the contributions.
Posted 15 January 2010
Ensuring kidney relief for the victims of the Haiti earthquake
Update from Ray Vanholder on work done to help survivors of this devastating catastrophe
www.isn-online.org/isn/news/soc_announ/fullview.html?content_id=73134
An ISN Renal Disaster Relief Task Force (RDRTF) assessment team entered Haiti via Santo Domingo, flying from Paris on 15 January. The team works in close collaboration with Médecins Sans Frontières (MSF). A second team with further equipment reached Port-au-Prince on 17 January. A third team was also sent later to Haiti.
All team members carried light material (e.g. Kayexalate, dialysis catheters) in their hand luggage. A cargo with heavy material (4 dialysis machines, an inflatable hospital) left Europe on 16 February but it was not possible for the carrying plane to land in Haiti. The material was rerouted to Santo Domingo in Dominican Republic, to be shipped to Port-au-Prince on smaller planes, eventually arriving January 17.
All the time we were confronted with serious communication problems, whereby only sporadic contacts can be held by satellite phone (early morning, local time) and email (late evening, local time). No contact is up to now possible by mobile phone. The situation with which our team is faced is dramatic. Most wounded people are lying in the streets without care, although the situation is improving slightly. All local hospitals are overcrowded and there is a shortage of all kinds of medical material including drugs, as well as water and electricity. Identification, triage and transport of victims with potential crush are hard to organize.
Our team found a hospital with three intact dialysis machines [General (University) Hospital] which were no longer used (all chronic patients had left when the earthquake occurred and did not return). To the best of our knowledge, this is the only potentially operative dialysis unit in the city. The building had first to be declared safe. The planning was to make the unit operational then add our own four machines. MSF would generate its own water and electricity. The whole process was unfortunately delayed due to chaos. The three Haitian machines could not be made operational as some materials were locked in closets and the local nephrologists could not be reached to open them. Once our cargo arrived in Port-au-Prince we had problems with transport and unloading.
It goes without saying that these are the most extreme disaster conditions we have ever been faced with during the existence of the RDRTF. Fortunately, we can rely on the excellent logistic support of MSF. We also are grateful for all the help and support we received from colleagues from all over the world. But structural chaos together with a disaster of unseen dimensions makes progress extremely difficult. Nevertheless, all these tiny acts of support together will help save a substantial number of lives.
The ISN President, Bernardo Rodriguez-Iturbe, is personally involved in coordinating efforts across the various scientific societies and organizations (SLANH, the Dominican Society of Nephrology, some of the dialysis manufacturers and of course the ISN members from Haiti and Dominican Republic).
You can help: Nephrologists and intensive care specialists interested in enrolling as volunteers for RDRTF should contact Coordination Centre through RDRTF@ugent.be
Posted 3 December 2009
Nine ways your business could be using social media, but probably isn’t!
You may wish to read an interesting article on social networking and how it can improve your organisation, provided by Jan Lantink , IFKF Project Officer, for your information and interest - click subject header link above.
Posted 30 November 2009
Latest World Kidney Day 2010 publications
World Kidney Day Editorial 2010 English
Diabetic kidney disease: Act now or pay later
World Kidney Day Editorial 2010 Spanish Espanol
Enfrmedad Renal Diabética: Actúe ahora o pague luego
Robert C Atkins and Paul Zimmet - For the 2010 International Society of Nephrology/International Federation of Kidney Foundations World Kidney Day Steering Committee* (RA) and the International Diabetes Federation (PZ) November 11 2009
Posted 2 November 2009
World Kidney Day Notice
IFKF Members note, to help increase the awareness of your foundation or organisation it is important that you update your website to show the current year's World Kidney Day logo. It is essential you also link to www.worldkidneyday.org website to ensure your organisation is recognised as an IFKF Member who is active in our worldwide network. Sign up to become a member of World Kidney Day and talk with others and find out what they are doing in their region.
World Kidney Day logo - Download from www.worldkidneyday.org the current logo, to adapt and reflect your local language. Individual links to download various media items are: *Email logos I *Web banners I *World Kidney Day logos I *World Kidney Day posters
Note: Key past IFKF News items have been archived at IFKF News Archive
Updated 10 January 2012