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IFKF MEMBER BLOG
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Start blogging now - no registration
Click on topic below e.g. 'Welcome to your IFKF Member Blogosphere', then click on 'More....' and enter blog note in the box at bottom of page and upload.
IFKF staff review material posted. We encourage free expression. Do not post content that is unlawful, harmful, threatening abusive, harassing, defamatory, vulgar, obscene, libelous, invasive to another's privacy, hateful, or racially, ethnically or otherwise objectionable. Treat other people's privacy as you would your own. Entry may be moderated as per Terms of Reference.
CLICK HERE TO GO BACK TO HOME BLOG PAGE, WHEN IN EDIT MODE
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Comments (28)
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Status of Mircera |
By Jim Scherrer on
10/7/2008 |
We are US citizens living in Puerto Vallarta, Mexico for the past 11 years. My wife was on dialysis for 5 months but has been off for the past two months and her creatinine is holding steady at 3.5.
The nephrologists here in Mexico have prescribed Exetin-A whereas we used Procrit, Epogen, and Aranesp in the US. While she is off dialysis, I administer the EPO at 10,000 i.u.´s/week and maintain her hemoglobin at 12 with no problem.
The EPO alpha burns like hell and my wife would really like to try Roche´s new miracle drug, Mircera, for a while. br>
Can anybody help us in finding a supplier of Mircera?
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Blogosphere ideas from Uruguay |
By Claudio Orazietti on
8/11/2009 |
I´m the Vice-President of the Sociedad Uruguaya de Nefrología www.nefrouruguay.com. In the lasts years with the FREU (Fundación Renal del Uruguay) and ATUR (Asociación de Transplantados del Uruguay) worked for World Kidney Day. Both the mentioned organizations are Members of the IFKF. You can see some activities described in Pasts Events - Uruguay at the WKD web page.
In November we held a Conmemorative Celebration of the 50 years of the first hemodialysis in our country. The Activities were at the Hospital de Clínicas at the Centro de Nefrología de la Facultad de Medicina de la Universidad de la República. There was a lot of emotion with the participation of the Prof Emmeritus Dr Dante Petrucelli (who participated 50 years ago in our first hemodialysis). Dr Miguel Riella participated of the cellebration with speaches about his Kidney Foundation and clinical topics. At any moment we remind you of our WKD efforts! We think this conmemorative events allows us to have a new opportunity to send to our people the messages of the relevance of the care of the kidney function. WE WANT TO STIMULATE OTHER ORGANIZATIONS IN OTHER COUNTRIES TO TAKE IN ACCOUNT THIS EXPERIENCE.
Now we are working for the 2009 WKD. It brings some difficulties to organize effectives activities, but we continue. Soon we will send information. I logged the WKD Forum and send a message.
With kind regards - Dr Claudio Orazietti |
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Re: Join your Blogosphere |
By Stephen Tan on
5/8/2009 |
Hi, I am from Malaysia. My father is undergoing dialysis everyday. I would like to know is it illegal for Malayisia government servant to have transplant of both of his kidney. Both of my father kidney have failed to function. He is a senior civil servant and according to his colleague, if he undergo a kidney transplant, then he would lost his retirement fund as it is not ethical for civil servant to have organ transplant.
I really hopes someone from IFKF can help me to solve my problem. |
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Re: Join your Blogosphere |
By MERCEDES FAUSTINO on
8/11/2009 |
| Hello people all over the world! Im from Philippines seek financial help for my sister and father who both having their dialysis twice a week and it costs too much.. We dont know where we'll find money for their dialysis. Some government org. here in our country give only once a year. I need your help. I know that some here has a kind heart and it will return more back to u if u give..If u want to know me My contact number HAS BEEN REMOVED DUE TO WEB POLICY. Thank you and God Bless! |
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Re: Join your Blogosphere |
By DR.KARUNAN KANNAMPOYILIL(PRAKASHAN KP) on
5/25/2009 |
Hi I am from INDIA www.inkf.org.in
Founder and Director Kidney foundation
we deal with the Early Detection and Prevention of Kkidney and Related Diseases
you all know we carry the number two of the heavy global population in narrow strip of land
I am sure it is high time for the preventive measures. |
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seeking finnancial help |
By aneeshshankar on
11/2/2009 |
Sir,mY name IS ANISH i contacted AKF INSTITUTION BUT THEY DONT HAVE THE FUNDING POLICY IN INDIA MY PROBLEM IS MY FATHER IS A KIDNEY PATIENT HE IS IN ADIALAYSIS STAGE BUT SIR IF CAN GO FOR A GOOD LEVEL OF TREATMENT I HOPE THAT HE CAN BE SAVE FROM DIALAYSIS
SIR WE ARE FROM MIDDLE CLASS FAMILY WE ARE NOT HAVING THAT MUCH FINANCIAL CAPABILITY Thats WHY I ASKED FOR AFINANCIAL HELP PLEASE HELP ME THIS IS MY LAST RESORT please
regards
aneeshshankar
Contact information REMOVED DUE TO WEB POLICY. |
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Re: Join your Blogosphere |
By IFKF Web Angel on
11/2/2009 |
Dear Aneeshshankar - unfortunately the IFKF can not offer financial support to the millions of people who are in the same situation as yourself. Seeing your family in pain knowing that medicine can help them, but being unable to supply that is a terrible burden on anyone.
The IFKF are trying to work with Government and departments that manage public health to increase prevention and early detection efforts globally. As an organisation was do not receive massive funding. Our Members pay fees which operate the IFKF.
I hope you and your family find peace in their life.
Regards - IFKF Web Manager |
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Re: Join your Blogosphere |
By adebayo sokunbi on
12/29/2009 |
| I thank the ifkf for its wonderful work so far. I hope that the kidney foundations and early discovery programs would help so many people who other wise would be in trouble when their kidneys fail at end stage. The goal will bee to continue to encourage these programes all over the world. |
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FINDING A KIDNEY |
By JACK LAKEY on
1/16/2010 |
| HELLO I have a close friend that is in the final stages of kidney failure and lives in the united states he needs a kidney right away and in the us the wait is very long. Does anyone know how i could find him a kidney in the international market how long it would take and is it illegal to offer monatary gain to speed up the process please email me at REMOVED DUE TO WEB POLICY (reply to Jack within the Blog) thanks. |
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Re: Join your Blogosphere |
By KARUNAN KANNAPOYILIL on
8/7/2010 |
Tuesday, August 3, 2010PROTECT KIDNEY SAVE INDIA ,PROTECT EARTH
WORLD KIDNEY DAY
Every year SECOND Thursday, March
Treatment of kidney disease……..
Needs medicines in thousands………
Dialysis in tens of thousands……….
Kidney transplantation in lakhs………..
Who will donate kidney…………
Who will donate a kidney………………
Who will give money……………..
Disease washes all the money
Disease washed away all the flesh and health……..
Prevent kidney diseases………..
Prevent hypertension…….
Prevent diabetes………
Prevent infections……….
Protect kidney…….
Protect India……
Protect the World…..
Protect our Earth….
Dr. KARUNAN KANNAMPOYILIL. AMBASSADOR WKD INDIA. |
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To get help from the consequences of the medicine |
By Deeparajendran on
10/5/2010 |
Dear all,
My father got kidney transplantation on 1998, march. From that day onwards he is having medicines. Now because of some infection his WBC count got reduced so he now takes Valcyte. But for the past 3 yrs he is suffering from skin alergic problems. His skin peels off and is everywhere on the floor. My question is : May i get any help for the skin problem? and also because of this any of our household members get affected?
Kindly reply me. My mail id : deepa.1977@gmail.com
With
Thanks & Regards,
Deepa |
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Re: Join your Blogosphere |
By Valentine on
11/25/2010 |
I hope someone uses this medium. It is a great tool. I am back after a long absence and trust me it feels so good being here. I am just getting up to speed with all that has been happening but I realise there is
hardly any time left as the WKD is calling already.
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Thank you for sharing this it has a very informative content.. I hope more of this comes.. God bless and more power.. |
By Jayzee Manlapaz on
1/22/2011 |
Thank you for sharing this it has a very informative content.. I hope more of this comes..
God bless and more power.. |
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seeking help |
By karen ann bernal on
6/10/2011 |
Im karen ann bernal 28 years old..diagnosed of ESRD or chronic kidney diseae.. please help me ... Im a 2x week dialysis patient here in the philippines for almost 5 years.. was supposed to have kidney transplant last May 27, 2011.. Im enrolled and a already have match kidney in HOPE or human organ preservation effort for cadaver ... But sad to say the doctor ask me to prepare 1 million pesos.. i was cancelled the said operation becacuse i dont have those amount... Please help me im suffering too much in dialysis... and it really weakens my body.. I cant really afford the super big expenses of this illness... Dont really know what to do and where to get im almost drained physically and finacially.. I still want to see my son's growing up...and enjoy the company with him... i finsih college but cant able to work beacuse of this illness... it is very hard struggle... keep on crying but I keep on fighting for my son... I know my son still needs me... Please help me get my kidneys back..
attach above are my pictures during dialysis.. please help me AS soonest possible in time my laboratories will be lapse.. Im relly asking your help for the operation and medicines.. please...THANK YOU SO MUCH..
Here is my doctor's number for my medical record: +639162614148
HOpe number where i get my match kidney: +2 9244673
My number; +639196103464
I was also featured in MANILA BULLETIN news paper please read:
read: http://iamkcat.blogspot.com/2011/01/kcat-can-blessings-ii.html
Blessings | The Manila Bulletin Newspaper Online
http://www.mb.com.ph/articles/298917/ble...
Manila Bulletin Online aims to deliver breaking news from the Philippines and across the globe with the top information on the latest stories in business, current Philippine events, entertainment, environment, sports and news breaking headlines. Follow us as we bring to you the latest news via spec
PLease help me...
Very truly yours
karen ann bernal
philippines |
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Re: Join your Blogosphere |
By Fernanda Arce on
10/2/2011 |
Hello, I am from Mexico City and I am the founder and President of "Asociacion Mexicana para el Estudio de la Acidosis Tubular Renal, A.C." and I want to ask you all how often is diagnosed this disease in your countries.
I invite you to visit our web page www.acidosistubular.com
Best regards,
Fernanda Arce |
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Re: Join your Blogosphere |
By r on
10/22/2011 |
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By Cheap shoes online on
11/26/2011 |
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The Epidemic Of CKD IN Southern Sudan |
By Valentine Imonje on
12/1/2011 |
A few days ago, I was in the state of Western Bahr El Ghazal, which is just two hours away, by air, from Juba in the Southern Sudan.
I was following up on a group of community health workers I had trained. I wanted to find out if the strategies we had laid had worked.
Previously, I had given them some tough love and made it clear that if they wanted to be part of our organization, they each must identify at least 5 clients who are living CKD.This is a country that is just recovering from deadly war and health systems are either not working or not there at all.
They vowed that this was impossible, citing high levels of literacy and lack of proper medical facilities and low awareness of CKD, but I remained firm because I believe in service delivery, regardless of the obstacles.
Some of the excuses I hate are "it's impossible" and "I can't".
When they realized that I was not bluffing, they did a perfect job. Each identified at least some clients. Some even had more.
They even went a step further and formed links with the state hospital that provides minimal RRT with the support of a WHO staffer.
On this visit, I decided to go the hospital and see where clients were being referred to, what kind of assistance they were getting, and what more we needed to do to improve the partnership.
On reaching the hospital, which is in Wau, I saw dilapidated red-earthen buildings that escaped the war and which looked like they would crumble any minute.
Outside the buildings were groups of people huddled around small fires.
"Who are those people who have lit fires in the compound?" I asked the field officer who accompanied me. "How come they are allowed to light fires in the hospital's compound?"
The officer was surprised at my questions. "Those are patients preparing their meals," she replied, adding that the hospital does not have the luxury of a kitchen and that patients have to prepare their own food. I was shocked.
I was even more shocked when I learnt that relatives have to travel to the hospital very early, or stay overnight so that they can buy their patients water from a tanker that passes by daily. It is either that or you die of thirst.
The hospital's only toilets are pit latrines with an over-powering stench.
There were also no bathrooms to speak of. It is almost a normal thing in Southern Sudan that if you are out in the open countryside, you can go on and take your bath under the cover of darkness.
And this is not only for the sick; it is also the done thing for the general populace. No one will bother to look at you because bathing out in the open is common around here.
With us was a woman who was in critical condition and need treatment urgently. We tried to see if she could be admitted, if not in the "hospital", then in the compound so that she could wait in the queue for the nephrologist(The only one in the Whole State).
I personally intervened. I am known there as wa mshikila.
I understand mshikila is any kind of trouble and I am labeled this way because of my focus on CKD. The Nephrologist had heard about me in Juba.
This woman's sole caregiver was her seven-year-old daughter, who was already overwhelmed by the responsibility.
If the doctor listened to our case, we would, hopefully, pre-empt this woman's impending demise and remove the burden of care from her child.
After a lengthy consultation, she was admitted. Following the procedures, we had to go and purchase a reef mat to serve as her bed, a few utensils for her makeshift kitchen, and supplies, even though she had no energy to cook.
We agreed that the community workers would go to the hospital on alternate shifts to cook for her. I must say that it was quite a relief that she was finally admitted.
However, our relief was short-lived because the following day, as I waited for my plane back to Juba, which was delayed because of lack of fuel, I was informed that she had passed away. Mind you I have witnessed these kind of deaths that as looked at as normal but they are indeed sickening and unnecessary.
My heart broke, especially for her young daughter, who was used to having her mother around.
My heart also went out to the community workers, faced with the unenviable task of delivering the terrible news that her mother was no more. It is not an easy job, this one.
As we prepare for World kidney Day let us all think about the people who need treatment and yet cant get for one reason or another. Let us pledge to work and do whatever we can to help make treatment available to all CKD patients.
Valentine Imonje
KHATO
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By jingmei on
12/14/2011 |
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Re: Join your Blogosphere |
By Equipacion del Barcelona 2012 on
12/19/2011 |
| saltó de cabeza con Nunes... Se veía que CR9 estaba en vena, que todo lo podía, que se creía capaz de cualquier cosa. Así que a la que vio tres defensas rivales en fila india, se tiró a por ellos de cabeza. Nuevamente, el fuego atrajo a la fiera en vez de Equipacion del Barcelona ahuyentarla y el resultado fue otro 'chicharrito' para el cuerpo, y van 25. Tras un doble regate sobre sendos adversarios, el tercer 'dribbling' le salió a CR9 acompa?ado de fortuna, pero esa diosa fortuna que solo se le aparece a los que como ella son seres superiores. Llámese Messi, Camiseta del Barça llámese Cristiano. La fiesta 'merengue' la redondeó en la recta final Gonzalo Higuaín, que recibió un gran pase de Guti y batió a Aouate con una vaselina preciosa. Con el partido decidido, los últimos instantes fueron propicios para seguir echando números y dándole vueltas al calendario, que Camiseta Madrid 2012 ya no guarda secretos. El título de Liga está en lo que pase la próxima jornada, cuando el Real Madrid reciba en casa al Athletic y el Barcelona se desplace al Ramón Sánchez Pizjuán, el único partido donde los azulgrana pueden ceder puntos pues en la última jornada se enfrentan al Valladolid en el Camp Nou. Quien salga como líder el sábado alrededor de las once de la noche, |
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By Cheap shoes online on
12/22/2011 |
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Re: Join your Blogosphere |
By gert on
1/7/2012 |
| Federico Laurito y Germán Pacheco (goleador de las inferiores del Atlético real madrid 2010 camiseta Madrid). Pacheco, quien estaba haciendo la pretemporada con la primera del Atleti, llegaría al club por seis meses real madrid 2012 , sin opción de compra.Por ahora, el club que mejor se reforzó comprar real Madrid es Boca Juniors, que el 29 de julio jugará su primer partido contra el Manchester United. Vélez y Lanús también aparecen para protagonizar el camisetas del real Madrid torneo. Se podría incluir a Estudiantes, pero creo yo que la camiseta del real madrid 2011 con el Mundial de Clubes en el horizonte, le será difícil camiseta nueva del real Madrid pelear el Apertura (le sucedió a Boca en el 2007).Así |
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Re: Join your Blogosphere |
By Maillot De Foot 2012 on
1/30/2012 |
| Estos criterios hacen difícil para el kit de la tienda de supermercados porque, por ejemplo, sería difíciles evitar colocar cerca de otros tipos de productos como Maillots De Football frijol grasa u otros tipos de ropa.Paul Crier, Director General de juguetes y deportes de Asda, dijo que no era sólo de Nike que utiliza estos criterios."En el pasado, tales como Umbro, Nike, Adidas, Reebok, no nos venden directamente que Maillot De Football hicieron todo lo podrían no venderla a nosotros directamente," dijo a BBC News.Umbro, Nike, Adidas y Reebok (que es propiedad de Adidas) son el kit para 15 de los 20 clubes de la Premier League y cuatro de los 12 equipos de fútbol y camisas internacionales de Maillot De Foot Inglaterra, Irlanda del Norte y República de Irlanda.Productos de lujoAlgunos fabricantes pueden usar estas restricciones, que son conocidas como redes de distribución seleccionadas.Un buen ejemplo podría ser una empresa que fabrica equipos de alta fidelidad, que pueden ser complicadoConsulte la necesidad de personal calificado que esté disponible para hacer frente a los clientesla problemas. |
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